Research and knowledge transfer; creating new knowledge through research, and sharing it, improves the health, and health care, of people living with HIV/AIDS.
Recent Research Activities
- The ART of conversation: Peer to peer telephone support. Casey House and the AIDS Committee of Toronto (ACT) have partnered to develop a peer telephone support intervention to assist people living with HIV who are actively using substances and who have initiated or re-started antiretroviral therapy (ART) while in hospital. The intervention promotes the meaningful inclusion of peers during a client’s transition from hospital to community, with specific focus placed on ART adherence and harm reduction.
- Exploring engagement through photography- Casey House is part of a project entitled Using photography to explore HIV engagement: a multi-site comparison, being led by Sarah Switzer as part of her PhD at York University, under the supervision of Dr. Sarah Flicker. Sarah S. and her team are working with Casey House clients and staff on this photo-voice project. Participants will explore and share their thoughts, experiences and perceived barriers and facilitators to client engagement at Casey House. This project will provide staff and clients the opportunity to experience photography as a research method, and discuss a critical topic at a time of opportunity and change at Casey House. Data is also being collected at Queen West Community Health Centre and the Toronto People With AIDS Foundation (PWA).
- A group of Master’s students in the physical therapy program at the University of Toronto are conducting a project entitled Where and how does Physical Therapy Fit? Integrating Physical Therapy in a Day Health Program (DHP) for Adults Living with HIV under the supervision of Dr. Kelly O’Brien and Dr. Soo Chan Carusone. This project will identify factors to consider when implementing physical therapy in a day health program for adults living with HIV from the perspective of adults living with HIV and health care professionals (HCPs) with expertise in HIV care.
- Led by Dr. Carol Strike from U of T, Casey House is investigating the effectiveness of our new day health program, which is scheduled to open in June. The evaluation will answer questions such as how clients want to measure outcomes, and what’s most important to them.
- Clients leaving inpatient program can struggle to maintain health- What gets in the way of following clients’ plans for taking care of their health once they leave hospital? A Casey House research team’s paper, The lived experience of the hospital discharge plan, calls for a closer look at hospital discharge plans for complex patients given the challenges of executing the plan once they are back in the community.The paper was chosen as the ‘editor’s pick’ in the January issue of the Journal of Hospital Medicine- congratulations to the Casey House research team. Read the full paper.
If you would like to know more about research at Casey House or have suggestions for future research projects contact Soo Chan Carusone (or 416-962-4040 ext. 255).
Research at Casey House is directed by Soo Chan Carusone, Casey House’s research lead.
Casey House research involves a variety of staff and students and is officially supported and guided by a research advisory committee (comprised of academics, clinicians, community agency representatives, staff, and community members who provide guidance in identifying research opportunities, partnerships and directions) and an internal knowledge translation working group (an internal group of staff who may provide operational guidance on research projects and facilitate engagement in the research process and the dissemination of findings.)
- Leader: Casey House conducts and leads research and program evaluation projects.
- Partner: Casey House partners with other organizations to conduct research.
- Facilitator: Casey House provides opportunities for engaging and transferring knowledge to the community through educational events and the training and mentoring of students.
Guiding Principles and Priorities
Casey House has a research plan and guiding principles, developed by the research planning task force in 2009. Casey House’s research program is client centred, collaborative and strategic, designed to improve care for the client and in-line with Casey House’s mission.
Our research focuses on projects that have the potential to improve the care and treatment for people with HIV, where Casey House can make a unique contribution. The conduct of research at Casey House adheres to GIPA principles, is respectful of clients, and is ethical and rigorous.
Priority research areas for Casey House include:
- Aging and HIV
- Complex care
- Health services research
- Treatment modalities and program evaluation
Casey House is committed to sharing and use of our research and has adopted an integrated knowledge translation approach; we are committed to engaging potential knowledge users in all stages of the research process.
2016 research activities:
- HIV, Health and Rehabilitation Survey (HHRS): a web-based survey with adults living with HIV in Canada asking about disability, concurrent health conditions, and rehabilitation services use. Read the high level results in the HHRS fact sheet.
- qualitative study exploring readiness to engage in exercise among people living with HIV and multi-morbidity in Toronto. This study was conducted at Casey House by a group of MScPT students from the University of Toronto, co-supervised by Dr. Kelly O’Brien from the department of physical therapy, and Casey House’s research lead, Dr. Soo Chan Carusone. The findings published in BMJ Open and in a poster format designed to provide recommendations and links to local resources for community members and service providers. Exploring readiness to exercise poster